Studies which are Now Recruiting

The Sibling Relationship Quality and Perspectives in Down Syndrome study aims to better understand relationships between adults with Down syndrome and their siblings.

The Brain Health and Aging in Down Syndrome (New Jersey Down Syndrome Aging Study) study aims to better understand healthy aging and resilience to Alzheimer's disease in adults with Down syndrome.

This survey aims to give researchers the tools to develop a new way of measuring changes in adaptive behavior in adolescents and adults with Down syndrome.

The Research Study Toolkit for Adults With Intellectual Disabilities (Project ENGAGE) aims to see if a new research tool for adults with intellectual disabilities can help them make decisions about participating in research studies.

The ABC-DS study aims to better understand the connections between Down syndrome and Alzheimer’s disease.

Modulation of the Immune System in Down Syndrome for Improved Outcomes and Neurodevelopment-1 Study (MISSION-1) will evaluate a six-month treatment of a medicine called tofacitinib (or XELJANZ®) to see if it can improve the health of individuals with Down syndrome.

This study explores how children with Down syndrome in remission from leukemia and their families experience survivorship, focusing on their daily lives, support systems and strengths and skills gained through their experience.

HomeGrown is an online program designed specifically to help families of young children with Down syndrome improve nutrition and physical activity practices at home.

The purpose of this study is to focus on how individuals from the Down syndrome community (caregivers and self-advocates) understand how to participate in research studies, how they perceive research studies, and how past experiences shape their decisions in participating in research studies.