Studies which are Now Recruiting

Do you want to participate in research? These organizations and institutions are looking for individuals with Down syndrome to join their studies. Pick a study you’re interested in to learn more and see if you meet the eligibility requirements. If you qualify, reach out to the study team today!

two women are embracing each other and smiling, one of the women has Down syndrome
Improving Medicaid Services for Pregnant Individuals with Developmental Disabilities
Eric Rubenstein, PhD, ScM
Virtual
18 years and older
This virtual study aims to improve Medicaid services for individuals with developmental disabilities by gathering more data on pregnancy experiences, outcomes, and quality of medical services from adult women with intellectual and developmental disabilities.

an individual with Down Syndrome is sleeping
Improving Sleep In 12 to 30 year olds with Down Syndrome
Caroline Richter, PhD
Online
12 to 30 years old
This study aims to improve sleep and quality of life in 12 to 30 year olds with Down syndrome who experience sleep problems.

an individual with Down Syndrome is on the computer and smiling
Caregiver and Youth with Intellectual Disability Online Questionnaires
Caroline Richter, PhD
Online
6 to 21 years old
This online study examines how memory and self-control, relate to activities of daily living and behavior in youth 6 to 21 years old with intellectual disability.

toddler with down syndrome is walking using an assisted mobility device while being supported by an adult
Measuring Stepping and Walking in Infants and Toddlers with Down Syndrome
Kari Kretch, PT, DPT, PhD
Los Angeles, CA
13 to 40 months
This study aims to collect step counts in infants and toddlers with Down syndrome who are learning to walk.

an individual with down syndrome is exercising and smiling
CareFit: Exercise Program Full of Movement, Music and Aging Support
Amy Bodde, PhD, MPH
Virtual
35 or older
This study aims to help us learn how a supportive caregiver training class and virtual group exercise classes can help older people with Down syndrome and their caregivers as they engage in physical activity.

Woman with Down syndrome opening a pill bottle
Brain Health Research for Adults with Down Syndrome
Shalender Bhasin, MB, BS
Boston, MA
18 years and older
The Brain Health Research for Adults with Down Syndrome study is a phase 1 clinical trial that will evaluate the safety and tolerability of a study drug, nicotinamide mononucleotide (NMN), given at different doses in adults with Down syndrome.

Woman with Down syndrome laughing with her sister
Sibling Relationship Quality and Perspectives in Down Syndrome
Milton Yoon and Sigan Hartley, PhD
Virtual
18 years and older
The Sibling Relationship Quality and Perspectives in Down Syndrome study aims to better understand relationships between adults with Down syndrome and their siblings.

Older woman with Down syndrome smiling
The New Jersey Down Syndrome Aging Study
Luciana Mascarenhas Fonseca, PhD
New Brunswick, NJ
20 years and older
The Brain Health and Aging in Down Syndrome (New Jersey Down Syndrome Aging Study) study aims to better understand healthy aging and resilience to Alzheimer's disease in adults with Down syndrome.

Boy with Down syndrome sitting next to his dad on a couch
Survey for Parents to Improve Down Syndrome Behavior Screening (Project HOPE)
Ruth Brown, PhD
Virtual
10 to 30 years old
This survey aims to give researchers the tools to develop a new way of measuring changes in adaptive behavior in adolescents and adults with Down syndrome.