Studies which are Now Recruiting

The purpose of this study is to collect feedback from caregivers of individuals with Down syndrome ages 0-21 on the Down Syndrome Health Measure (DSHM) Survey.

Family caregivers of adults living with Down syndrome or another intellectual disability who are developing additional memory problems as they age are invited to join and give feedback about CarePRO Virtual-DS/ID, a free 5-week online workshop designed to reduce distress and improve quality of life for its caregiver participants.

The purpose of this study is to test how well personalized surgical treatment helps children with Down syndrome (DS) who have obstructive sleep apnea (OSA).

The study is evaluating hearing, speech, and language for people with Down syndrome of all ages.

This research study aims to understand whether families of individuals with Down syndrome have received education from healthcare providers about the risk of infantile spasms and to identify if there are geographic or demographic differences in who receives this information.

The purpose of this study is to examine the connection between menopause, caregiving responsibilities, and physical activity among mothers of children with or without disabilities in the United States.

The purpose of this study is to understand how doctors, patients with Down syndrome, and their supporters talk to each other during clinic visits.

Adults with Down Syndrome will play games and do simple activities on the computer, on paper, and with board games. These activities help researchers learn how people think and solve problems. Parents or caregivers will answer questions about everyday skills, like memory and daily routines.

The Brain Outcomes and Lifestyle in Down syndrome (BOLD) study aims to understand how dietary changes and weight impact the risk of Alzheimer's disease in adults with Down syndrome.