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If you have questions or concerns about your participation in the DS-Connect® registry, please contact us at: info@ds-connect.org. Please do not include any personal health information in your request.

 

  1. Click the button "Join the Registry" on the DS-Connect registry homepage or the "Join" menu in the upper right of the screen.
  2. On the Registration page, you will first "Create new account," which means entering your name and email address and creating a Username and Password.
    • Tip: This Username and Password will be required each time you log into the account.
  3. Read the online consent questions.
  4. Check the appropriate consent/assent boxes.
  5. Complete the requested health details for the person with DS that will be the subject of the account.
  6. Click "Create new account" at the bottom of the page.

  1. Click "Login" in the upper right corner. Then click the "Reset your password" above the Login fields.
  2. Enter the email address or Username you used to create the account.
  3. Click "Submit."
  4. A link will be sent to your email address with instructions on changing your password.
  5. If you have received the reset link and still cannot access your account, please contact the registry coordinator at: info@ds-connect.org.

  1. Click "Login" in the upper right corner. Then click the "Reset your password" above the Login fields.
  2. Enter the email address or Username you used to create the account.
  3. Click "Submit."
  4. A link will be sent to your email address with instructions on changing your password.
  5. If you have received the reset link and still cannot access your account, please contact the registry coordinator at: info@ds-connect.org.

  1. Click "Login" in the upper right corner. Then click the "Reset your password" above the Login fields.
  2. Enter the email address you used to create the account.
  3. Click "Submit."
  4. A link will be sent to your email address with instructions on changing your password.
  5. If you have received the reset link and still cannot access your account, please contact the registry coordinator at: info@ds-connect.org.

  1. Please follow the instructions above to reset your Password.
  2. If you have reset your Password and still cannot access your account, please contact the registry coordinator at: info@ds-connect.org.

  1. The Password needs to be 12 characters long.
  2. Make sure you include one upper case, one lower case, one number and one symbol in the Password.
  3. Make sure there are no spaces between the characters.

  1. Log in to your account.
  2. Click the "My Account" menu item in the upper right corner of the screen.
  3. Click the "Edit" link.
  4. Enter your "Current Password".
  5. Enter the new password in the "Password" field.
  6. Make sure it is 12 characters long and include one upper case, one lower case, one number and one symbol in the password.
  7. Make sure there are no spaces between the characters.
  8. Re-enter the new password in the "Confirm Password" field.
  9. Click the "Save" button at the bottom of the page.

  1. Log in to your account.
  2. Click the "My Account" menu item in the upper right corner of the screen.
  3. Click the "Edit" link.
  4. Optional - Enter your "Current Password" if you are changing your password or email address.
  5. Enter changes to any of the other fields on the page.
  6. Click the "Save" button at the bottom of the page.

  1. Due to security requirements of the registry, users cannot re-use a Password that has been used in the four previous password settings. This error message appears when you are attempting to change your password and have chosen a password that has been used previously in your account.
    • Tip: When updating information in your account do not enter a password into the field for "Current Password" unless you intend to change your password or email.
  2. If you receive this error message, you need to choose a new Password which meets the password criteria and has not been used in the previous four password settings.
    • Note: Any information that has been entered and changed on this page may be removed if the password is incorrectly entered. You will have to re-enter all the information.

  1. This message appears when you have not logged into your account for over 12 months.
  2. Log into https://www.ds-connect.org immediately to prevent your account from being deactivated.
  3. You will also be prompted to change your password.
  4. Once your account expires, you will not be able to log into your account, and you must contact the DS registry coordinator (Email: info@ds-connect.org) to have your account re-activated.

  1. Log in to your account.
  2. Click the "My Account" menu item in the upper right corner of the screen.
  3. Click the "Edit" link
  4. Enter changes to the Birthdate field.
  5. Click the "Save" button at the bottom of the page.

  1. Log in to your account.
  2. Click the "My Account" menu item in the upper right corner of the screen.
  3. Click the "Edit" link
  4. Enter your "Current password".
  5. Enter the new email address in the "Email address" field.
  6. Click the "Save" button at the bottom of the page.

Taking part in DS-Connect is completely voluntary-it is your choice. You do not have to join this Registry. If you decide not to join, you are still a member of the DS community. You can continue to receive health care and other support even if you decide not to join DS-Connect.