Studies which are Now Recruiting

HomeGrown is an online program designed specifically to help families of young children with Down syndrome improve nutrition and physical activity practices at home.

The Down Syndrome Health Measure (DSHM) is a new, short survey that was created specifically with people with Down syndrome in mind, and asks questions about aspects of overall health. Now that this final measure is available, we’re interested in collecting feedback on the survey from caregivers of individuals with Down syndrome age 0 to 21.

Family caregivers of adults living with Down syndrome or another intellectual disability who are experiencing memory changes are invited to participate in CarePRO Virtual-DS/ID, a free 5-week online workshop designed to reduce distress and improve quality of life.

The purpose of this study is to focus on how individuals from the Down syndrome community (caregivers and self-advocates) understand how to participate in research studies, how they perceive research studies, and how past experiences shape their decisions in participating in research studies.

The purpose of this study is to test how well personalized surgical treatment helps children with Down syndrome (DS) who have obstructive sleep apnea (OSA).

The study is evaluating hearing, speech, and language for people with Down syndrome of all ages.

This research study aims to understand whether families of individuals with Down syndrome have received education from healthcare providers about the risk of infantile spasms and to identify if there are geographic or demographic differences in who receives this information.

The purpose of this study is to examine the connection between menopause, caregiving responsibilities, and physical activity among mothers of children with or without disabilities in the United States.

The purpose of this study is to understand how doctors, patients with Down syndrome, and their supporters talk to each other during clinic visits.