Studies which are Now Recruiting

Do you want to participate in research? These organizations and institutions are looking for individuals with Down syndrome to join their studies. Pick a study you’re interested in to learn more and see if you meet the eligibility requirements. If you qualify, reach out to the study team today!

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Woman with DS doing research
How does the brain change during the teenage years in people with Down syndrome?
Max Kurz, PhD
Nebraska
12 years through 19 years old
This study uses brain imaging (e.g., MEG and MRI) to evaluate the developmental differences in the brain activity of youth with Down syndrome and how they are connected with cognitive and motor development.

an individual with Down syndrome is sitting in a room with a TV screen and fidget device
Respiratory Neural Drive in Down Syndrome
Jayakrishnan Nair PT, MSPT, PhD
Pennsylvania
10 to 35 years old
This study will examine how the brain, spinal cord and breathing muscles work together in people with Down syndrome. The goal is to better understand the causes of breathing difficulties and identify potential new approaches to support respiratory health.

an individual with Down syndrome is laying on a medical table receiving an ultrasound on their arm by a medical professional
Vascular Function in Adults With Down Syndrome
Thessa Hilgenkamp, PhD
Nevada
18 to 35 years old
This study will look at how well the blood vessels work in adults with and without Down syndrome. Researchers hope to learn more about heart and blood vessel health in adults with Down syndrome.

Woman with DS checks her smart watch
Using Wearable Technology to Measure Body Composition and Physical Activity in Adults With Down Syndrome
Brett S. Nickerson, Ph.D., CSCS*D, EP-C, FACSM
Columbus, OH or Tuscaloosa, AL
18 to 60 years old
This study aims to evaluate the accuracy and reliability of wearable devices for measuring body composition and physical activity in adults with Down syndrome.

two parents kiss their baby with Down syndrome on the cheek
Parental Perspectives on a Down Syndrome Genetic Counseling Practice Resource
Eva Milian
Virtual
18 years and older
This is a survey is to better understand how parents of children with Down syndrome feel about the information given to families after receiving a high-risk screening result or diagnosis of Down syndrome during pregnancy. This has the potential of informing future genetic counseling practice.

a person with Down syndrome hugging a horse's head
Equine-Assisted Learning Program and the Down Syndrome Community
Caitlin Peters, Ph.D., OTR/L
Virtual
22 to 35 years old
This study invites young adults with Down syndrome and their caregivers or support staff to provide feedback on a novel equine-assistedlearning program designed for this community.

individual with Down syndrome at the doctors office
Investigating Diagnosis and Therapies for Down Syndrome Regression Disorder (NOVA Study)
Jonathan Santoro MD
California
5 to 40 years old
The purpose of this study is to develop standardized data collection methods for collecting data to improve the diagnosis of Down Syndrome Regression Disorder (DSRD) and support the development of effective treatments. The study will involve two groups: individuals with DSRD and individuals with Down syndrome who do not have regression.

an individual with Down syndrome is smiling and looking at the camera.
Improving Medical Guidelines for Adults with Down Syndrome Study
Dawn Christine Allain, M.S., L.G.C.
Virtual
18 years and older
This is a survey for the legal guardians of adults with Down syndrome to assess knowledge of medical management guidelines, evaluate adherence to those guidelines, and identify barriers that interfere with adults with Down syndrome receiving care consistent with those guidelines.

two women are embracing each other and smiling, one of the women has Down syndrome
Improving Medicaid Services for Pregnant Individuals With Developmental Disabilities
Eric Rubenstein, PhD, ScM
Virtual
18 years and older
This virtual study aims to improve Medicaid services for individuals with developmental disabilities by gathering more data on pregnancy experiences, outcomes, and quality of medical services from adult women with intellectual and developmental disabilities.