Connect Your Research with the Down Syndrome Community

Did you previously have a researcher account?

Researcher accounts are no longer required to promote recruitment to a study or request a letter of support.

Female researcher

Promote recruitment for your study through DS-Connect

Did you know that 75% of families with a loved one with Down syndrome are interested in participating in research? A main goal of DS-Connect is to connect families who want to participate in research with the research community. You can request to share your study information with DS-Connect participants here.

Request a Letter of Support

DS-Connect can provide a Letter of Support for your grant proposal or IRB submission to support recruitment activities or new surveys.

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Propose a New Survey or Provide Feedback


Do you have a suggestion for a new health survey, a specific question you would like to see added, or other feedback? Reach out here and we will contact you to follow-up.

Access Data through the INCLUDE Data Hub

The INCLUDE Project promotes data sharing to accelerate discoveries. De-identified data collected through DS-Connect is accessible through the INCLUDE Data Hub.

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