Request DS-Connect Participants to Your Study

Indicates required field

If you would like to recruit DS-Connect participants for your study, please fill out this form, and a member of the Research Review Committee will reach out to you. The review committee generally meets monthly to review and approve studies. If they require more information, your application will not be reviewed again until the next meeting, so please be thorough. Your study must be approved by an IRB before submitting your request.

If approved, your study will be listed on the Research Studies page of this website and have its own individual webpage. In addition, a monthly email will be sent to DS-Connect participants with DS-Connect approved studies information.

Click here for a word template for this form.

Contact Information

Principal Investigator name

Principal Investigator email

Study contact name

Enter the name of the study coordinator or contact if different from the Principal Investigator.

Study contact email

Enter the email of the study coordinator or contact if different from the Principal Investigator.

Research organization

Basic Study Information

Recruitment timeline

What is the proposed start and end dates for recruitment?

Study Website URL

Provide a live URL link for the website with additional information about your study.

Target enrollment from DS-Connect

Enter the number of participants you would like to recruit from the DS-Connect Registry.

Study abstract

To be reviewed by the Research Review Committee.

Source of funding (NIH, NSF, DOD, CDC, etc.)

Additional information

Is there anything else we should know about your study?

Study documentation

IRB approval

One file only.
2 MB limit.
Allowed types: pdf, png, jpg, jpeg.

IRB approved Recruitment materials

Unlimited number of files can be uploaded to this field.
2 MB limit.
Allowed types: pdf, png, jpg, jpeg.

Study protocol or synopsis

One file only.
2 MB limit.
Allowed types: txt, rtf, pdf, doc, docx, odt, ppt, pptx, odp, xls, xlsx, ods.

Public Facing Webpage Content

Please enter your study's information as you would like it presented on ds-connect.org. See this example for how your information will appear. The language you submit must be approved by an IRB.

Your contact information and study URL will be included automatically.

We ask you review this guidance to ensure you are portraying individuals with Down syndrome in the most respectful manner.

Study name

This will be used as the title on the webpage.

Summary

Write a one-sentence summary of your study, which will appear on the page listing all available studies and in search results (e.g., Google, Bing, etc.). Must be IRB approved language.

Logo

Upload an image you would like displayed with your study. Must be IRB approved.
One file only.
2 MB limit.
Allowed types: svg, jpg, jpeg, png.

Who can participate in this study?

List the criteria used to include participants in your study. Must be IRB approved language.

Who cannot participate in this study?

List the criteria used to exclude participants in your study. Must be IRB approved language.

Where does this study take place?

Must be IRB approved language.

What activities are involved in this study?

Must be IRB approved language.

What is the expected time commitment of this study?

Must be IRB approved language.

What languages does this study support?

e.g., English, Spanish, etc. Must be IRB approved language.

Is compensation provided?

Advertisement of the amount of compensation has been disabled due to concerns of increased bot traffic.

Confirmation