The purpose of this study is to understand how doctors, patients with Down syndrome, and their supporters talk to each other during medical appointments.
Who can participate in this study?
Adults with Down syndrome
Who cannot participate in this study?
Contact the research team for additional eligibility requirements.
Where does this study take place?
In your primary care provider’s office.
What activities are involved in this study?
You will have your next primary care visit video and audio recorded, and complete short surveys about the visit.
What languages does this study support?
English
Is compensation provided?
Yes
If you are interested in joining the Improving Health Care Communication and Engagement for Adults with Down syndrome study, please contact the study team, Elizabeth Paschal and Dr. Jessica Solomon Sanders, at CareDD@cuanschutz.edu.
IRB # (25-1679)