Family caregivers of adults living with Down syndrome or another intellectual disability who are experiencing memory changes are invited to participate in CarePRO Virtual-DS/ID, a free 5-week online workshop designed to reduce distress and improve quality of life.
Who can participate in this study?
- Family caregivers of adults with Down syndrome or another intellectual disability who are developing memory changes as they age can participate in the workshop.
- Participants must be the primary caregiver or the person most responsible for care decisions if their family member with Down syndrome is living in a residential facility.
Who cannot participate in this study?
Individuals unable to join virtually.
Where does this study take place?
Virtually
What activities are involved in this study?
- 5 online group sessions (2.5 hours each)
- 5 individual coaching sessions (30 minutes each)
- 2 brief, confidential interviews at the beginning and end of the program
- Questions ask about your background, mood and quality of life
Participants in this study will:
- Learn more about dementia in individuals with DS-ID
- Learn how to manage stress, distress, and concerns
- Learn how to communicate with your loved ones and others
- Learn how to stay engaged and plan for the future
What is the expected time commitment of this study?
Over the entire study, the total expected duration of participation across 9 weeks is about
17 hours.
What languages does this study support?
English
Is compensation provided?
Yes
To learn more, visit the contact page and indicate interest in CarePRO Virtual-DS/ID on the second slide, or contact the research team by calling 602-496-1239 or emailing agingsuccessfully@asu.edu.
IRB # STUDY00013749