Studies which are Now Recruiting

Do you want to participate in research? These organizations and institutions are looking for individuals with Down syndrome to join their studies. Pick a study you’re interested in to learn more and see if you meet the eligibility requirements. If you qualify, reach out to the study team today!

Filter studies

Search by location
Study format
Language
Search by participant age range
Search by keyword
Researcher with person with Down syndrome smiling
Alzheimer Biomarkers Consortium-Down Syndrome (ABC-DS)
Annie Cohen, PhD
Multiple locations in the United States and United Kingdom
25 years and older
The ABC-DS study aims to better understand the connections between Down syndrome and Alzheimer’s disease.

Girl with Down syndrome with a doctor
Modulation of the Immune System in Down Syndrome for Improved Outcomes and Neurodevelopment-1 Study (MISSION-1)
Joaquín Espinosa, PhD
Colorado
6 to 22 years old
Modulation of the Immune System in Down Syndrome for Improved Outcomes and Neurodevelopment-1 Study (MISSION-1) will evaluate a six-month treatment of a medicine called tofacitinib to see if it can improve the health of individuals with Down syndrome.

Girl with Down syndrome reading with her mom
Exploring Quality of Life in Children With Down Syndrome After Leukemia
Karla Ausderau, PhD
Virtual or Multiple locations within United States
5 to 21 years old
This study explores how children with Down syndrome in remission from leukemia and their families experience survivorship, focusing on their daily lives, support systems and strengths and skills gained through their experience.

Man with Down syndrome sitting with a woman at a computer
Caregiver and Self-Advocate Perspectives on Research Design and Information (PARDI)
A. Nicole White, PhD
Virtual
18 years and older
The purpose of this study is to focus on how individuals from the Down syndrome community (caregivers and self-advocates) understand how to participate in research studies, how they perceive research studies, and how past experiences shape their decisions in participating in research studies.

Mother and daughter with Down syndrome at a computer
Down Syndrome Health Measure (DSHM) Survey
Stephanie Santoro, MD
Virtual
0 to 21 years old
The Down Syndrome Health Measure (DSHM) is a new, short survey that was created specifically with people with Down syndrome in mind, and asks questions about aspects of overall health. Now that this final measure is available, we’re interested in collecting feedback on the survey from caregivers of individuals with Down syndrome age 0 to 21.

Man on a virtual meeting waving at the computer
Workshop to Help Reduce Stress for Caregivers: CarePRO Virtual-DS/ID
David Coon, PhD
Virtual
18 years and older
Family caregivers of adults living with Down syndrome or another intellectual disability who are experiencing memory changes are invited to participate in CarePRO Virtual-DS/ID, a free 5-week online workshop designed to reduce distress and improve quality of life.

Young child with Down syndrome sleeping
Treatment of Obstructive Sleep Apnea With Personalized Surgery in Children With Down Syndrome (TOPS-DS)
Derek Lam, MD, MPH
Multiple locations in the United States
2 to 17 years old
The purpose of this study is to test how well personalized surgical treatment helps children with Down syndrome (DS) who have obstructive sleep apnea (OSA).

Researcher checking the ears of a child with Down syndrome with and otoscope
Improving Hearing, Speech, and Language Outcomes for Individuals With Down Syndrome
Lori Leibold, PhD
Nebraska
7 months or older
The study is evaluating hearing, speech, and language for people with Down syndrome of all ages.

Young man with Down syndrome speaking with a medical professional at an appointment
Improving Health Care Communication and Engagement for Adults with Down Syndrome
Jessica Solomon Sanders, MD
Virtual
18 years or older
The purpose of this study is to understand how doctors, patients with Down syndrome and their supporters talk to each other during clinic visits.