Studies which are Now Recruiting

Do you want to participate in research? These organizations and institutions are looking for individuals with Down syndrome to join their studies. Pick a study you’re interested in to learn more and see if you meet the eligibility requirements. If you qualify, reach out to the study team today!

Filter studies

Search by location
Study format
Language
Search by participant age range
Search by keyword
Young child with Down syndrome sleeping
Treatment of Obstructive Sleep Apnea with Personalized Surgery in Children with Down Syndrome (TOPS-DS)
Derek Lam, MD, MPH
Multiple locations in the United States
2 to 17 years old
The purpose of this study is to test how well personalized surgical treatment helps children with Down syndrome (DS) who have obstructive sleep apnea (OSA).

Researcher checking the ears of a child with Down syndrome with and otoscope
Improving Hearing, Speech, and Language Outcomes for Individuals with Down Syndrome
Lori Leibold, PhD
Omaha, NE
7 months or older
The study is evaluating hearing, speech, and language for people with Down syndrome of all ages.

Young man with Down syndrome speaking with a medical professional at an appointment
Improving Health Care Communication and Engagement for Adults with Down Syndrome
Jessica Solomon Sanders, MD
United States
18 years or older
The purpose of this study is to understand how doctors, patients with Down syndrome, and their supporters talk to each other during clinic visits.

Infant with Down syndrome lying down on blanket
Evaluating Caregiver Awareness of Infantile Spasms Risk in Children with Down Syndrome
Christina Briscoe Abath MD, EdM
Virtual in the United States
18 years or older
This research study aims to understand whether families of individuals with Down syndrome have received education from healthcare providers about the risk of infantile spasms and to identify if there are geographic or demographic differences in who receives this information.

Woman with Down syndrome playing a game at a table with a man
Understanding Problem Solving and Thinking Skills in Adults with Down Syndrome
Yingying Yang, PhD
Montclair, New Jersey
35 to 50 years old
Adults with Down syndrome will play games and do simple activities on the computer, on paper, and with board games. These activities help researchers learn how people think and solve problems. Parents or caregivers will answer questions about everyday skills, like memory and daily routines.

Young man with Down syndrome eating at a table with a family member
Studying How Diet and Weight Affect Alzheimer's Risk
Lauren Ptomey, PhD, RD
Kansas City, KS
18 to 64 years old
The Brain Outcomes and Lifestyle in Down syndrome (BOLD) study aims to understand how dietary changes and weight impact the risk of Alzheimer's disease in adults with Down syndrome.

Woman with Down syndrome looking at a phone sitting on a couch
Online Survey to Develop Pregnancy Resource App for Individuals with Developmental Disabilities
Willi Horner-Johnson, PhD
Virtual
18 to 50 years old
The Pregnancy Decisions App Project is looking for adults with developmental disabilities to take a survey for their research project about pregnancy and disabilities.

Three HTP participants smiling and showing off their blood draw bandages
Human Trisome Project
Joaquín Espinosa, PhD
Denver, CO
6 months to 89 years old
This project will significantly increase the speed of Down syndrome research and the understanding of associated medical conditions such as leukemia and Alzheimer's disease.

Young woman with Down syndrome looking at a phone with her friend
Help Develop a New Phone App for Teens and Young Adults with Down Syndrome (ThriveDS)
Aaron Dallman, PhD and Shristi Rawal, PhD
Newark, NJ or Virtual
14 years old and up
The purpose of the research study is to create a fun, easy-to-use mobile app to support healthy habits in teens and young adults with Down syndrome.