Studies which are Now Recruiting

The Down Syndrome Health Measure (DSHM) is a new, short survey that was created specifically with people with Down syndrome in mind, and asks questions about aspects of overall health. Now that this final measure is available, we’re interested in collecting feedback on the survey from caregivers of individuals with Down syndrome age 0 to 21.

Family caregivers of adults living with Down syndrome or another intellectual disability who are experiencing memory changes are invited to participate in CarePRO Virtual-DS/ID, a free 5-week online workshop designed to reduce distress and improve quality of life.

The purpose of this study is to test how well personalized surgical treatment helps children with Down syndrome (DS) who have obstructive sleep apnea (OSA).

The study is evaluating hearing, speech, and language for people with Down syndrome of all ages.

The purpose of this study is to understand how doctors, patients with Down syndrome, and their supporters talk to each other during clinic visits.

This research study aims to understand whether families of individuals with Down syndrome have received education from healthcare providers about the risk of infantile spasms and to identify if there are geographic or demographic differences in who receives this information.

Adults with Down syndrome will play games and do simple activities on the computer, on paper, and with board games. These activities help researchers learn how people think and solve problems. Parents or caregivers will answer questions about everyday skills, like memory and daily routines.

The purpose of this study is to examine the connection between menopause, caregiving responsibilities, and physical activity among mothers of children with or without disabilities in the United States.

This study is an online two-week mindfulness intervention study for parents of children with developmental disabilities. This study will help researchers better understand if a brief mindfulness program can help reduce stress in parents and caregivers and enhance overall well-being.