Studies which are Now Recruiting

Do you want to participate in research? These organizations and institutions are looking for individuals with Down syndrome to join their studies. Pick a study you’re interested in to learn more and see if you meet the eligibility requirements. If you qualify, reach out to the study team today!

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Woman with alopecia and a person's arm with eczema
Clinical Study for Skin and Scalp Diseases in Individuals with Down Syndrome
Emma Guttman, MD, PhD and Dusan Bogunovic, PhD
New York, NY
12 years and older
This study is testing whether a medicine called abrocitinib can help people 12 years and older with Down syndrome treat alopecia areata (hairloss) and symptoms of atopic dermatitis (eczema).

Infant with Down syndrome playing with blocks
Mapping the Interactions of Language and Early motor Skills in Down Syndrome (MILES Study)
Sandra Vanegas, PhD
Texas
6 to 30 months old
The team is interested in studying the early development of language and motor skills in children with and without Down Syndrome.

Woman holding infant with Down syndrome
Moving Forward: Early Predictors of Crawling and Walking in Infants with Down Syndrome
Ashley Collimore, PhD
Virtual
12 months old and younger
This observational study will help researchers better understand the everyday movements and activities of infants younger than 12 months (adjusted for prematurity) with Down syndrome and track their motor skills over time.

Child with Down syndrome smiling and sitting at the table with her family
Understanding Differences in Thinking, Learning, and Behavior for Individuals with Down Syndrome With and Without Childhood Cancer
Lisa Jacola, PhD, ABPP-CN Neuropsychologist, Associate Faculty Member
Virtual
All ages
The goal of this study is to learn about differences in thinking, learning, and behavior for individuals with Down syndrome with and without a history of childhood cancer; we are recruiting parents and caregivers of individuals with Down syndrome and no history of childhood cancer for this part of the study.

Man with Down syndrome and a woman sitting at a desk with a computer
Healthy Aging and Neurodevelopment in Down Syndrome (HANDS)
Jennifer Bruno, PhD
Stanford, CA
8 to 65 years old
This study investigates brain changes related to development in children and adults with Down syndrome.

Mother and daughter with Down syndrome using a phone
Improving Memory in Teens and Young Adults with Down Syndrome
Jaclyn H. Ford, PhD
Virtual
15 to 25 years old
This is a VIRTUAL 3-month intervention study of the effects of a smartphone application (HippoCamera) on personal event memory in teens and young adults with Down syndrome.

Individual with Down syndrome sitting at table with other adult, pointing to a chart
Speech, Language and Swallowing in Individuals with Down Syndrome
Krista Wilkinson
University Park, PA
18 to 40 years old
This study aims to teach us how to improve services for individuals with Down syndrome who find it hard to be understood through speech and/or experience regular problems with choking on food or liquid. We also seek to understand how the brain helps to control swallowing and speech production.

Mother holding smiling young daughter with Down syndrome
Parent Survey to Understand Challenging Behaviors in Down Syndrome (BIDS-Phase 2)
Anna Esbensen, PhD
Virtual
2 to 17 years old
Caregivers of children and teenagers with Down syndrome ages 2 to 17 are invited to complete a survey helping develop the first-ever tool measuring challenging behavior that is specifically made FOR children with Down syndrome and created WITH the Down syndrome community.

Woman with Down syndrome working in a grocery store
Project ASPIRE - Assessing Skills that Predict Independence and Readiness for Employment
Nancy Raitano Lee, PhD and Gregory Wallace, PhD
Virtual
25 to 35 years old
Researchers at Drexel University are conducting a study to learn more about how cognitive and behavioral factors influence employment outcomes and independent living skills in young adults with Down syndrome.