Virtual

This study aims to improve sleep and quality of life in 12 to 30 year olds with Down syndrome who experience sleep problems.

This online study examines how memory and self-control, relate to activities of daily living and behavior in youth 6 to 21 years old with intellectual disability.

This virtual study aims to improve Medicaid services for individuals with developmental disabilities by gathering more data on pregnancy experiences, outcomes, and quality of medical services from adult women with intellectual and developmental disabilities.

This study aims to help us learn how a supportive caregiver training class and virtual group exercise classes can help older people with Down syndrome and their caregivers as they engage in physical activity.

The Sibling Relationship Quality and Perspectives in Down Syndrome study aims to better understand relationships between adults with Down syndrome and their siblings.

The Research Study Toolkit for Adults With Intellectual Disabilities (Project ENGAGE) aims to see if a new research tool for adults with intellectual disabilities can help them make decisions about participating in research studies.

This survey aims to give researchers the tools to develop a new way of measuring changes in adaptive behavior in adolescents and adults with Down syndrome.

This study explores how children with Down syndrome in remission from leukemia and their families experience survivorship, focusing on their daily lives, support systems and strengths and skills gained through their experience.

The Down Syndrome Health Measure (DSHM) is a new, short survey that was created specifically with people with Down syndrome in mind, and asks questions about aspects of overall health. Now that this final measure is available, we’re interested in collecting feedback on the survey from caregivers of individuals with Down syndrome age 0 to 21.

Family caregivers of adults living with Down syndrome or another intellectual disability who are experiencing memory changes are invited to participate in CarePRO Virtual-DS/ID, a free 5-week online workshop designed to reduce distress and improve quality of life.