Virtual

The purpose of this study is to focus on how individuals from the Down syndrome community (caregivers and self-advocates) understand how to participate in research studies, how they perceive research studies, and how past experiences shape their decisions in participating in research studies.

This research study aims to understand whether families of individuals with Down syndrome have received education from healthcare providers about the risk of infantile spasms and to identify if there are geographic or demographic differences in who receives this information.

The Pregnancy Decisions App Project is looking for adults with developmental disabilities to take a survey for their research project about pregnancy and disabilities.

The purpose of the research study is to create a fun, easy-to-use mobile app to support healthy habits in teens and young adults with Down syndrome.

This observational study will help researchers better understand the everyday movements and activities of infants younger than 12 months (adjusted for prematurity) with Down syndrome and track their motor skills over time.

The goal of this study is to learn about differences in thinking, learning, and behavior for individuals with Down syndrome with and without a history of childhood cancer; we are recruiting parents and caregivers of individuals with Down syndrome and no history of childhood cancer for this part of the study.

This is a VIRTUAL 3-month intervention study of the effects of a smartphone application (HippoCamera) on personal event memory in teens and young adults with Down syndrome.

Caregivers of children and teenagers with Down syndrome ages 2 to 17 are invited to complete a survey helping develop the first-ever tool measuring challenging behavior that is specifically made FOR children with Down syndrome and created WITH the Down syndrome community.

Researchers at Drexel University are conducting a study to learn more about how cognitive and behavioral factors influence employment outcomes and independent living skills in young adults with Down syndrome.