Virtual / Online

This is a survey is to better understand how parents of children with Down syndrome feel about the information given to families after receiving a high-risk screening result or diagnosis of Down syndrome during pregnancy. This has the potential of informing future genetic counseling practice.

This study invites young adults with Down syndrome and their caregivers or support staff to provide feedback on a novel equine-assistedlearning program designed for this community.

This is a survey for the legal guardians of adults with Down syndrome to assess knowledge of medical management guidelines, evaluate adherence to those guidelines, and identify barriers that interfere with adults with Down syndrome receiving care consistent with those guidelines.

This study aims to improve sleep and quality of life in 12 to 30 year olds with Down syndrome who experience sleep problems.

This online study examines how memory and self-control, relate to activities of daily living and behavior in youth 6 to 21 years old with intellectual disability.

This virtual study aims to improve Medicaid services for individuals with developmental disabilities by gathering more data on pregnancy experiences, outcomes, and quality of medical services from adult women with intellectual and developmental disabilities.

This study aims to help us learn how a supportive caregiver training class and virtual group exercise classes can help older people with Down syndrome and their caregivers as they engage in physical activity.

The Sibling Relationship Quality and Perspectives in Down Syndrome study aims to better understand relationships between adults with Down syndrome and their siblings.

The Research Study Toolkit for Adults With Intellectual Disabilities (Project ENGAGE) aims to see if a new research tool for adults with intellectual disabilities can help them make decisions about participating in research studies.

This survey aims to give researchers the tools to develop a new way of measuring changes in adaptive behavior in adolescents and adults with Down syndrome.