This is a survey for the legal guardians of adults with Down syndrome to assess knowledge of medical management guidelines, evaluate adherence to those guidelines, and identify barriers that interfere with adults with Down syndrome receiving care consistent with those guidelines.
Who can participate in this study?
- Legal guardians of an individual with Down Syndrome who is 18 years or older
- Must be able to read English
- Must have access to an electronic device to complete the online
questionnaire
Who cannot participate in this study?
- Individuals who are not fluent in English
- Individuals who are younger than 18 years old
- Individuals who are not legal guardians of someone diagnosed with Down syndrome
- Individuals who are legal guardians of someone diagnosed with Down syndrome younger than 18
Where does this study take place?
Virtual
What activities are involved in this study?
A 40-question online survey
What language does this study support?
English
Is compensation provided?
No. However, there will be a $1 donation for each response (up to $300) to the Down Syndrome Association of Central Ohio (DSACO).
If you are interested in participating, please visit the study website or contact the study team at mckenna.lewis@osumc.edu.
IRB ID: 20261291