Adult (18+)
Improving Medicaid Services for Pregnant Individuals with Developmental Disabilities
This virtual study aims to improve Medicaid services for individuals with developmental disabilities by gathering more data on pregnancy experiences, outcomes, and quality of medical services from adult women with intellectual and developmental disabilities.
Principal investigator
Eric Rubenstein, PhD, ScM
Location
Virtual
Age range
18 years and older
Brain Health Research for Adults with Down Syndrome
The Brain Health Research for Adults with Down Syndrome study is a phase 1 clinical trial that will evaluate the safety and tolerability of a study drug, nicotinamide mononucleotide (NMN), given at different doses in adults with Down syndrome.
Principal investigator
Shalender Bhasin, MB, BS
Location
Boston, MA
Age range
18 years and older
The New Jersey Down Syndrome Aging Study
The Brain Health and Aging in Down Syndrome (New Jersey Down Syndrome Aging Study) study aims to better understand healthy aging and resilience to Alzheimer's disease in adults with Down syndrome.
Principal investigator
Luciana Mascarenhas Fonseca, PhD
Location
New Brunswick, NJ
Age range
20 years and older
Research Study Toolkit for Adults With Intellectual Disabilities (Project ENGAGE)
The Research Study Toolkit for Adults With Intellectual Disabilities (Project ENGAGE) aims to see if a new research tool for adults with intellectual disabilities can help them make decisions about participating in research studies.
Principal investigator
Katherine McDonald, PhD
Location
Virtual
Age range
18 years and older
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