Adult (18+)

Improving Medicaid Services for Pregnant Individuals with Developmental Disabilities

This virtual study aims to improve Medicaid services for individuals with developmental disabilities by gathering more data on pregnancy experiences, outcomes, and quality of medical services from adult women with intellectual and developmental disabilities.
Principal investigator
Eric Rubenstein, PhD, ScM
Location
Virtual
Age range
18 years and older

CareFit: Exercise Program Full of Movement, Music and Aging Support

This study aims to help us learn how a supportive caregiver training class and virtual group exercise classes can help older people with Down syndrome and their caregivers as they engage in physical activity.
Principal investigator
Amy Bodde, PhD, MPH
Location
Virtual
Age range
35 and older

Sibling Relationship Quality and Perspectives in Down Syndrome

The Sibling Relationship Quality and Perspectives in Down Syndrome study aims to better understand relationships between adults with Down syndrome and their siblings.
Principal investigator
Milton Yoon and Sigan Hartley, PhD
Location
Virtual
Age range
18 years and older

Brain Health Research for Adults with Down Syndrome

The Brain Health Research for Adults with Down Syndrome study is a phase 1 clinical trial that will evaluate the safety and tolerability of a study drug, nicotinamide mononucleotide (NMN), given at different doses in adults with Down syndrome.
Principal investigator
Shalender Bhasin, MB, BS
Location
Boston, MA
Age range
18 years and older

The New Jersey Down Syndrome Aging Study

The Brain Health and Aging in Down Syndrome (New Jersey Down Syndrome Aging Study) study aims to better understand healthy aging and resilience to Alzheimer's disease in adults with Down syndrome.
Principal investigator
Luciana Mascarenhas Fonseca, PhD
Location
New Brunswick, NJ
Age range
20 years and older

Alzheimer Biomarkers Consortium-Down Syndrome (ABC-DS)

The ABC-DS study aims to better understand the connections between Down syndrome and Alzheimer’s disease.
Principal investigator
Annie Cohen, PhD
Location
Multiple locations in the United States and United Kingdom
Age range
25 years and older