This survey aims to give researchers the tools to develop a new way of measuring changes in adaptive behavior in adolescents and adults with Down syndrome.
Who can participate in this study?
Parents and caregivers of an individual with Down syndrome ages 10 to 30
Who cannot participate in this study?
- Anyone under 18
- Anyone not living in the United States
Where does this study take place?
Online or by phone
What activities are involved in this study?
A study team member will call to ask questions to verify your identity and obtain your consent. You will then take one 30- to 60-minute survey virtually or by phone about your loved one's mental health, development and behavior.
What is the expected time commitment of this study?
The screening call and survey will take no more than 75 minutes.
What languages does this study support?
English
Is compensation provided?
Yes
To check eligibility and enroll, visit the Survey for Parents to Improve Down Syndrome Behavior Screening (Project HOPE) prescreen page. If you have any questions or are interested in participating in the study, please contact the research team at hopelab@vcu.edu.
IRB # MOD00001041