The goal of this study is to learn about differences in thinking, learning, and behavior for individuals with Down syndrome with and without a history of childhood cancer; we are recruiting caregivers of individuals with Down syndrome and no history of childhood cancer for this part of the study.
Who can participate in this study?
Caregivers of individuals with Down syndrome with no history of childhood cancer. Must speak English, Spanish, or French.
Who cannot participate in this study?
See inclusion criteria.
Where does this study take place?
Surveys can be completed on a computer, by mail, or by phone.
What activities are involved in this study?
Participants will complete surveys that ask questions about their child’s thinking, learning, behavior, and quality of life. Surveys can be completed on a computer, by mail, or by phone.
What is the expected time commitment of this study?
Participants will be asked to complete surveys 3 times over a period of 3 years.
What languages does this study support?
English, Spanish, and French
Is compensation provided?
Yes
If you have any questions or are interested in joining the Neurocognitive and quality of life outcomes in individuals with Down syndrome study, please contact the study coordinator at DSCOG2@stjude.org or call (833)591-0724.