We’re excited to announce the official relaunch of DS-Connect®: The Down Syndrome Registry on World Down Syndrome Day 2025!
Launched by the National Institutes of Health (NIH) in 2013, the registry supports research participation and provides resources for people with Down syndrome, their families and scientists. Now managed by the University of Colorado in close collaboration with the NIH, our mission stays the same: advancing research to help people with Down syndrome live longer, healthier lives.
To learn more, access our announcement and the NIH's Item of Interest.
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