Infant (0-2)
Down Syndrome Health Measure (DSHM) Survey
The Down Syndrome Health Measure (DSHM) is a new, short survey that was created specifically with people with Down syndrome in mind, and asks questions about aspects of overall health. Now that this final measure is available, we’re interested in collecting feedback on the survey from caregivers of individuals with Down syndrome age 0 to 21.
Principal investigator
Stephanie Santoro, MD
Location
Virtual
Age range
0 to 21 years old
Moving Forward: Early Predictors of Crawling and Walking in Infants with Down Syndrome
This observational study will help researchers better understand the everyday movements and activities of infants younger than 12 months (adjusted for prematurity) with Down syndrome and track their motor skills over time.
Principal investigator
Ashley Collimore, PhD
Location
Virtual
Age range
12 months old and younger
Understanding Differences in Thinking, Learning, and Behavior for Individuals with Down Syndrome With and Without Childhood Cancer
The goal of this study is to learn about differences in thinking, learning, and behavior for individuals with Down syndrome with and without a history of childhood cancer; we are recruiting parents and caregivers of individuals with Down syndrome and no history of childhood cancer for this part of the study.
Principal investigator
Lisa Jacola, PhD, ABPP-CN Neuropsychologist, Associate Faculty Member
Location
Virtual
Age range
All ages
Parent Survey to Understand Challenging Behaviors in Down Syndrome (BIDS-Phase 2)
Caregivers of children and teenagers with Down syndrome ages 2 to 17 are invited to complete a survey helping develop the first-ever tool measuring challenging behavior that is specifically made FOR children with Down syndrome and created WITH the Down syndrome community.
Principal investigator
Anna Esbensen, PhD
Location
Virtual
Age range
2 to 17 years old