Latest DS-Connect® News

DS-Connect Webinar Banner
September 25, 2025
We appreciate your interest in the recent DS-Connect webinar featuring Dr. Anna Esbensen, Dr. Mike Raffi, and members…
DS-Connect team posing with NYC Buddy Walk participants
September 8, 2025
The DS-Connect®: The Down Syndrome Registry team participated in the 2025 NYC Buddy Walk in New York City, NY. …
DS-Connect team in the NDSC Annual Convention exhibit hall
July 30, 2025
The DS-Connect®: The Down Syndrome Registry team was part of the National Down Syndrome Congress (NDSC) 2025 Annual…
2025 NDSC Annual Convention logo
June 13, 2025
Join the DS-Connect team in Dallas, TX, from July 24–27 for the 2025 NDSC Annual Convention! The National Down Syndrome…
ABC-DS website homepage
May 22, 2025
The Alzheimer Biomarkers Consortium-Down Syndrome (ABC-DS) works to better understand Alzheimer’s in adults with…
Dr. Espinosa giving a thumbs up with two self-advocates and a woman
April 2, 2025
In March 2025, Linda Crnic Institute for Down Syndrome Executive Director and leader of DS-Connect, Dr. Joaquin…
Young boy with Down syndrome high-fiving a woman
March 21, 2025
We’re excited to announce the official relaunch of DS-Connect®: The Down Syndrome Registry on World Down Syndrome Day…
DS-Connect®, NIH, GLOBAL and Crnic Institute teams outside of the Rockin' Moms Retreat
October 1, 2024
The DS-Connect®: The Down Syndrome Registry team gathered with hundreds of moms of young children with Down syndrome in…
DS-Connect® and NIH team members posing with a race participant
September 17, 2024
The DS-Connect®: The Down Syndrome Registry team participated in the Adult Disability Medical Healthcare (ADMH) 2024…