The DS-Connect®: The Down Syndrome Registry team gathered with hundreds of moms of young children with Down syndrome in Las Vegas for the 2024 Rockin' Mom™ Retreat hosted by the Down Syndrome Diagnosis Network (DSDN).
DSDN is the nation's largest organization dedicated to supporting new and expectant parents following a Down syndrome diagnosis. DSDN's mission is to connect, support, and provide accurate information to parents - and the medical professionals who serve them - from the time of diagnosis through age three while fostering the opportunity for lifelong connections. The Rockin' Mom™ Retreat is a chance for moms to enjoy a child-free weekend to recharge, connect and learn.
The DS-Connect team shared and answered questions about project alongside the National Institutes of Health INCLUDE Project and the INCLUDE Data Coordinating Center.