Joining DS-Connect takes just a few minutes.
Unlock the power of Down syndrome today!
You hold the key to longer and healthier lives for all people with Down syndrome
DS-Connect®: The Down Syndrome Registry enables people with Down syndrome and their families to contribute to research studies, connect with Down syndrome researchers, and find resources and community events.
Make Discoveries Possible
Know the Facts
Join the Community
Be a member of an active community with a common cause
How it Works
Surveys
Fill out confidential health-related surveys written by researchers who are studying Down syndrome.
Research
Researchers use data from thousands of participants to make discoveries.
Participate
When researchers design new studies or clinical trials, you can opt-in to be notified and participate.
Resources
Find expert news, links and events, and see how the data from studies you've completed drives discoveries.
Did you sign up for DS-Connect
before January 1, 2025?
The DS-Connect website has been updated, with exciting new features coming soon.
If you have a loved one with Down syndrome: Please reset your password to access your account, and we will notify you as the new features are launched.
If you are a RESEARCHER: You no longer need an account and your previous account information has been removed. Find out about the tools for researchers available to you.
Upcoming Events
Latest News
September 25, 2025
We appreciate your interest in the recent DS-Connect webinar featuring Dr. Anna Esbensen, Dr. Mike…
September 8, 2025
The DS-Connect®: The Down Syndrome Registry team participated in the 2025 NYC Buddy Walk in New…
July 30, 2025
The DS-Connect®: The Down Syndrome Registry team was part of the National Down Syndrome Congress (…